the title of my post is something I hear alot. But, you don't look sick? Sometimes thats a wonderful thing and other times it isn't. What gets me is the fatigue and the pain that reaches down to my bones. The feeling like I have been awake for hours and need to close my eyes during work hours.
How fustrating this life of mine is. I just looked at my teeth and the cavities are looking worse. I use to go to the dentist every 2 weeks because of cavities. I guess after my trip its back to the dentist and paying off the medical bills that have piled up especially the one where they have put a judgement against me. I work to pay my medical bills. There is no way around it anymore, thats just what is. So, my vacation will be my last one for a long time. I will enjoy it to the fullest, spend sometime listening to my body and writing in my journal. Reflecting and praying daily for a miracle.
I go tomorrow for a ultrasound of my kidneys, yesterday I went to retake my blood test that showed my GFR at 27 and my Creatinine at 2.06. Last December 2010 it was at 1.8 and eGFR was at 30. Potassium is lower and the new kidney doctor ordered meds for that. I go Monday to find out the results and if I go for a kidney biopsy which should have been done a very long time ago.
We will see what my options are. Today I could barely walk without feeling pain, seems like its worse then it has been the past 3 years. Not sure if my Sjogrens has finally started to attack with a force or I am just getting old. I want to cry but, I have no tears... my eyes are very dry.
Tomorrow is a new day, I will think positive ... will continue with the research of getting better or at least not having so much pain and fatigue. I read that fish oil helps with dry eyes. Need to start taking that. Need to start taking my Vitamin D once a week again since the last blood work shows its at 28. Doctor wants it at the very least 32. Time will tell. Good night...
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